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networking organization for the families, carers, and professionals giving care to children and adults with Batten Disease.. Having a child with Batten Disease has changed every aspect of our lives. Since that day in October 1996 we have learned
much about Batten Disease.. Within the Federal Government, the focal point for research on Batten Disease and other neurogenetic disorders is the
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or the neuronal ceroid lipofuscinoses. For more information, please download our Infantile Batten Disease.
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two beautiful little boys have Batten's Disease, this is not a well known disease but causes blindness,
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and has a variety of other symptoms,. Batten disease is a genetic disorder in which waste builds up in the body and kills healthy cells. This disease affects about three in every 100000 children. Supportive, informative, networking